What should I bring to my first oncology appointment for Lymphoma

What to Bring to Your First Lymphoma Oncology Appointment

Here's a practical checklist to help you prepare for your first visit with your oncology team:

[ID removed] & Test Results

• All previous imaging reports (CT scans, PET scans, MRI reports) - According to NCCN Guidelines for Marginal Zone Lymphomas, imaging tests like CT, MRI, and PET scans are key diagnostic tools, and your oncologist will need to review these detailed reports
• Pathology report from your lymph node biopsy or tissue sample - This is critical because it contains information about your lymphoma type and any genetic mutations found in your cancer cells
• Lab work results (blood tests, bone marrow biopsy results if done) - These help your doctor understand your overall health and any mutations in your lymphoma cells
• Any genetic or biomarker testing results - According to NCCN Guidelines, mutation testing looks for specific changes in your cancer cells that may affect treatment options

Insurance & Administrative Documents

• Insurance card and photo ID
• List of current medications (including over-the-counter drugs and supplements)
• Emergency contact information
• Any advance directives or healthcare proxy documents

Personal Information to Share

• Complete medical history - including other health conditions, past surgeries, and allergies
• Family cancer history - note any relatives with cancer
• Symptom timeline - when you first noticed symptoms like swollen lymph nodes, fever, night sweats, or fatigue

Questions & Notes

• Written list of questions you want to ask (see suggestions below)
• Notebook or device to take notes during the appointment
• List of your healthcare providers - names and contact information for your primary care doctor and any specialists

Helpful Questions to Ask Your Oncology Team

1. About your diagnosis:

   • What type of lymphoma do I have, and what does that mean?
   • What stage is my lymphoma, and what does that tell us?
   • Are there any specific mutations or biomarkers in my cancer cells?

2. About treatment:

   • What treatment options are available for my specific type and stage?
   • What is the goal of treatment (cure, remission, symptom control)?
   • What are the potential side effects I should expect?

3. About your care team:

   • Who will be involved in my care?
   • How often will I have appointments?
   • How do I reach you between appointments if I have concerns?

4. About support:

   • Are there support groups or resources available?
   • Should I see a nutritionist or other specialists?
   • What resources does your center offer for patients?

Optional but Helpful

• A trusted family member or friend to attend with you - they can help take notes and provide support
• Calendar to schedule follow-up appointments
• List of pharmacies you use (if you have multiple)

Why This Matters

According to NCCN Guidelines for Marginal Zone Lymphomas and other lymphoma types, your oncologist needs comprehensive information about your diagnosis, imaging findings, and any genetic testing to develop a personalized treatment plan. Having organized records helps your team make the best decisions for your care and saves time during your appointment.

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This information is for educational purposes only. Always consult your healthcare team for personalized medical advice and decisions.