I will redo both PET and MRI scans in three weeks but my mouth is really starting to hurt - what can I do to...

I understand this must be really stressful—waiting for results while experiencing pain is difficult. Let me help you think through this clearly.

Important First Step

Before assuming this is cancer recurrence, it's critical to identify what's causing the pain. Oral pain during surveillance can have many causes:

• Post-treatment tissue changes or scarring
• Oral mucositis (inflammation of mouth tissues)
• Infection (fungal, bacterial, or viral)
• Dental issues
• Radiation-related complications
• Temporomandibular joint (TMJ) problems
• Neuropathic pain from previous treatment

Getting a diagnosis of the pain itself is the first step.

What You Can Do NOW (Before Imaging Results)

1. Contact Your Oncology Team Immediately

• Don't wait 3 weeks if pain is significant
• Describe: location, severity (1-10 scale), when it started, what makes it better/worse
• Ask for urgent evaluation—they may want to see you sooner

2. Symptom Management

• Topical relief: Oral anesthetics (benzocaine), salt water rinses, ice chips
• Pain management: Over-the-counter options (acetaminophen, ibuprofen) or prescription options your doctor recommends
• Oral care: Soft toothbrush, alcohol-free mouthwash, avoid irritating foods
• Nutrition: Soft foods, smoothies, protein supplements if swallowing is difficult

3. Specialist Evaluation

• Ask your oncology team if you need to see: oral surgeon, dentist, speech pathologist, or pain management specialist
• They can identify the specific cause of pain

If Cancer IS Confirmed

According to NCCN Guidelines for Head and Neck Cancers, treatment decisions depend on:

• Location and extent of recurrence
• Previous treatments you've received
• Time since original treatment
• Your overall health status

Options may include surgery, radiation, chemotherapy, or combinations—but your team determines this based on your complete clinical picture.

Questions to Ask Your Team RIGHT NOW

1. "Can I be seen sooner than 3 weeks given this pain?"
2. "What could be causing this pain besides cancer recurrence?"
3. "Should I see a specialist (oral surgeon, dentist, pain management) while waiting for imaging?"
4. "What pain management options are safe for me given my treatment history?"
5. "If imaging confirms recurrence, what would treatment look like, and how quickly would we start?"

Reality Check

Accelerating treatment before you have a diagnosis isn't possible—and it's important to know what you're treating. Your imaging in 3 weeks will give you answers. In the meantime, managing pain and getting evaluated for its cause is the right focus.

Don't suffer unnecessarily while waiting. Call your oncology team today about the pain.

This information is for educational purposes only. Always consult your healthcare team for personalized medical advice and decisions.