Has anyone lost part of their vision on treatments? It’s been almost 2 years since I lost peripheral vision in my...

I'm genuinely sorry you're dealing with this—vision loss from radiation necrosis is a real and significant side effect that many cancer survivors face. Your caution about driving is understandable and responsible.

About radiation necrosis and vision loss:

Radiation necrosis occurs when healthy brain tissue is damaged by radiation therapy, causing inflammation and cell death. When this affects the visual pathways or occipital lobe (the brain's vision center), it can result in permanent vision changes like the peripheral vision loss you're experiencing. This is unfortunately one of the known late effects of brain radiation, and you're right that it's typically not reversible—though some patients report slight stabilization or adaptation over time.

What others have reported:

While I don't have access to specific patient support communities, cancer survivors with similar vision changes commonly describe:

• Initial adjustment period (which you've had 2 years of)
• Gradual adaptation and learning to compensate with head/eye movement
• Some people eventually returning to driving after formal vision assessment and adaptive training
• Others choosing not to drive due to safety concerns

The critical next step—before driving:

Rather than relying on others' experiences, you need a formal vision assessment from an ophthalmologist or neuro-ophthalmologist who can:

• Measure your exact visual field loss
• Assess whether it's safe for you to drive legally in your state
• Recommend adaptive strategies or devices if appropriate
• Potentially refer you to a driving rehabilitation specialist

Questions to ask your healthcare team:

1. "Should I have a formal vision assessment before attempting to drive?"
2. "Are there driving rehabilitation specialists who work with vision loss from cancer treatment?"
3. "What are my state's legal requirements for driving with my type of vision loss?"
4. "Are there adaptive devices or training that could help me drive safely?"
5. "What warning signs should I watch for that would mean I shouldn't drive?"

Why this matters: Peripheral vision loss affects your ability to detect hazards on the sides of the road—this is a safety issue for you and others. A professional assessment isn't about limiting you; it's about determining what's actually safe based on YOUR specific vision loss pattern.

Many cancer survivors do return to driving after vision changes, but it requires proper evaluation first. Your instinct to be cautious is good—let the professionals help you determine if and how you can drive safely.

This information is for educational purposes only. Always consult your healthcare team for personalized medical advice and decisions.