Cancer Patient Lab Expert Webinar

“Blueprint to Beat Cancer”

Featuring: Robb Owen

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Robb Owen

“Blueprint to Beat Cancer” (Robb Owen) [#103] Brad Power June 26, 2024 “It was not what I expected. I just wanted to survive it. I never expected to be able to walk out of it, knowing exactly how I was able to beat this cancer.” – Robb Owen “Once I started filling all this stuff out, it jumped off the page. It’s a synergistic mix of everything together.
The two prescriptions they gave me had key components in this. It wasn't just all- natural. It really was an integrative mix between natural and conventional. I firmly believe that if you follow this path, the treatment can be reduced to three weeks versus a seven-week treatment plan.” – Robb Owen “Half of my patents are up here behind me.

I had to go through that same thing coming up with something novel. This is why it didn't stress me out in what I did. I've had battles before with all kinds of doctors before with my own health where I've often been correct. So, I've had enough training in my background to put my mind at ease to make decisions that are not considered typical.

” – Robb Owen Meeting Summary "Engaged patients get better outcomes" is one of our core beliefs at the Cancer Patient Lab. But what does a very engaged patient look like? We encourage advanced cancer patients and caregivers to get very involved in educating themselves about their disease so that they can be copilots with their medical team in making complex testing and treatment decisions.

Some patients and caregivers take it a step farther by leading their care decisions, sometimes disagreeing with the advice of their medical team, and carving their own path. If they are successful in controlling their disease, they are seen as "citizen scientist" role models by many. Consider the story of Robb Owen. He's a mechanical engineer by education and profession.

He is an artist, writer, and cancer patient “citizen scientist” activist by passion. He had never dabbled in the medical sciences until he got a diagnosis of stage 4a (metastatic) head and neck squamous cell carcinoma last October. He had heard of squamous cell carcinoma but knew very little about the disease.

Two of his cousins had experienced head and neck cancers with one having a near identical incidence like his. He used his cousins as reference points in advance of his treatment, then dove in and learned everything he could about squamous cell carcinoma in a few months from extensive reading of the medical literature available.

He realized during his treatment that he was progressing remarkably better than his reference points. He began to ask direct questions of his oncologist. The multiple oncologists and medical team’s typical responses were, “Sometimes we see this, and sometimes we don’t, and we don’t know why.” He didn’t like these answers, so he decided to solve this mystery on his own.

ogists and medical team’s typical responses were, “Sometimes we see this, and sometimes we don’t, and we don’t know why.” He didn’t like these answers, so he decided to solve this mystery on his own. He began studying the details of the blood markers the doctors used to track his progress, then studied his head and neck squamous cell carcinoma biochemistry.

“Blueprint to Beat Cancer” (Robb Owen) [#103] He had implemented a strict regimen plan including vitamins, minerals, hyper-hydration, drugs, stress mitigation, and exercise based upon a typical regimen he had utilized for several years.

Once he added the modified chemoradiotherapy program into his regimen, the tumor resolved in two weeks, and he ended chemoradiotherapy after three weeks, showing no evidence of disease (vs. the seven-week standard protocol).

During his chemoradiotherapy treatment, he began cross-referencing how each component from his personal treatment plan interacted with components of the immune system and head and neck squamous cell carcinoma. He realized that the synergistic benefits of this plan were the reason for his remarkable recovery. He had battles with his oncologist over his proposed treatment regimen.

His radiation oncologist had read a preliminary case study Robb had written about his plan and couldn’t dispute any of the findings, but did tell him, “You haven’t proven anything yet.” He then told him, ”You are risking your life by ending treatment now.

” Robb responded, “I am risking my life more by remaining in the treatment because you are now treating a cancer-free healthy patient,” and stood his ground, ending the prescribed protocol. His primary care doctor told him, "You are putting out radical ideas," but did remark that, “This treatment plan may be a cure for this disease or at worst, a better way to treat it.

” A follow-up visit after the post treatment PET scan with his osteopathic doctor, Robb asked, “How often have you seen people respond to treatment like I had?” His doctor responded that he saw it often, but stated, “The only difference between those patients and you is that you stopped treatment so early.

“Blueprint to Beat Cancer” (Robb Owen) [#103] to its debilitating effects on their body or they were terminal and wanted to live out the rest of their lives as normally as possible. I’ve never seen a patient stop their treatment on their own accord with the success that you’ve had.” His team is the group that submitted Robb’s case study to Mayo Clinic for review.

During his chemoradiotherapy, he didn't experience the typical side effects of standard chemoradiotherapy -- he did not throw up or lose any functional ability, and he was able to eat normally without taste issues with a modified Mediterranean diet and minimal side effects from the radiation (EBRT).

f standard chemoradiotherapy -- he did not throw up or lose any functional ability, and he was able to eat normally without taste issues with a modified Mediterranean diet and minimal side effects from the radiation (EBRT). Robb wrote a 109-page technical case study about his experience that he has shared with Mayo Clinic, Ascension St.

Vincent's Oncology and ENT tumor clinic, and oncologists and doctors around the globe. He has written a book about his problem-solving method that is currently in an editing phase. He is writing a patent for an oral and IV version of the treatment solution to be used prior to and concurrently with standard chemoradiotherapy protocols. What does Robb believe caused his exceptional response?

●A combination of traditional medicine (chemotherapy, radiation, and steroids) with complementary therapies (nutrition, exercise, hydration, stress reduction, and supplements) ●An unusual ability to heal faster than typical patients from a strong immune system, specifically a more robust fibroblast system (fibroblasts are cells in the tumor microenvironment that secrete factors which influence cancer progression), due to a combination of genetics and his lifestyle and supplements ●The ability to handle anxiety and uncertainty in his chosen treatment based on previous experiences in fighting resistance to innovation ●A model derived from research literature of how each treatment component ((the standard therapies like radiation and chemotherapy, plus various supplements and superfoods, such as zinc) reacted with squamous cell carcinoma and with the immune system, then self-experimented with his cancer treatment; he used lymphocytes and the neutrophil to lymphocyte ratio to measure the strength of his immune system ●His intuition and listening to his body's cravings for specific foods during his treatment, which he believes helped his immune system fight his cancer What can we learn from Robb’s story?

●Advocate for yourself : Patients and caregivers should be willing to challenge their doctors. ●Consider holistic approaches : incorporate nutrition, exercise, stress reduction, and supplements along with the standard treatments (e.g., chemotherapy and radiation) ●Find a peer community : Connect with others who have gone through similar experiences to get a sense of community and support.

●Run experiments: try things and measure it against an intermediate endpoint, e.g., the strength of your immune system ●Strive to find your minimum viable dose vs. the maximum tolerated dose : if you have a measure of your disease status (e.g.

“Blueprint to Beat Cancer” (Robb Owen) [#103] to get the effect you want, and maybe you will need less treatment than the standard dose (usually the maximum tolerated dose), thereby avoiding toxic side effects What can you do to learn more about integrative practices?

est), tune your treatment

“Blueprint to Beat Cancer” (Robb Owen) [#103] to get the effect you want, and maybe you will need less treatment than the standard dose (usually the maximum tolerated dose), thereby avoiding toxic side effects What can you do to learn more about integrative practices?

●Study Robb’s spreadsheet with his treatments and their methods of action ●See our conversations with others who have talked about integrative oncology: Mark Taylor, Bapcha Murthy, Nasha Winters, and Donald Abrams. ●Read the Society for Integrative Oncology guidelines here What can you do to learn more about being a citizen scientist with your care?

●Read the research on citizen scientists by Eric von Hippel of MIT, such as “ When Patients Become Innovators ” ●See our conversations with others who have talked about their experience as empowered citizen scientists: “A Cancer Hacker Solves His Own Needs and Helps Others Access the Best, New, Personalized Tests and Treatments” (Mark Taylor) , “How I Am Running Experiments on Myself to Control My Prostate Cancer – Using Bipolar Androgen Therapy” (Russ Hollyer) , and "A Patient Uses Novel Testing Services to Guide His Treatment" (Brad Power) .

The information and opinions expressed on this website or platform, or during discussions and presentations (both verbal and written) are not intended as health care recommendations or medical advice by Cancer Patient Lab, its principals, presenters, participants, or representatives for any medical treatment, product, or course of action.

You should always consult a doctor about your specific situation before pursuing any health care program, treatment, product or other course of action that might affect your health.

“Blueprint to Beat Cancer” (Robb Owen) [#103] Meeting Notes KEYWORDS fibroblasts, treatment, cancer, research, lymphocytes, chemo, tumor, weeks, point, started, robb, question, oncologist, radiation, dopamine, supplements, work, patient, zinc, doctors SPEAKERS Robb Owen (73%), Bill Paseman (6%), Ari Akerstein (6%), Cindy Ness (5%), Brad Power (4%), Philip Tan (3%), Roger Royse (2%), Ellen Miller (1%) SUMMARY Robb Owen shared his personal experience with cancer treatment, emphasizing the importance of patient-led care and holistic approaches.

He discussed natural treatment approaches, including lifestyle elements and supplements. The conversation highlighted the need for a comprehensive and personalized approach to cancer treatment, prioritizing the patient's voice and well-being. Connecting with others who have gone through similar experiences is valuable, as it can provide a sense of community and support.

OUTLINE Cancer patient advocacy and personalized treatment experiences for squamous cell carcinoma. ●Robb Owen shares his experience as a "super patient" navigating cancer treatment. ●He had a persistent lesion and lump, despite taking supplements and seeing multiple doctors.

mmunity and support. OUTLINE Cancer patient advocacy and personalized treatment experiences for squamous cell carcinoma. ●Robb Owen shares his experience as a "super patient" navigating cancer treatment. ●He had a persistent lesion and lump, despite taking supplements and seeing multiple doctors. ●His cancer diagnosis was delayed due to lack of investigation into unrelated skin lesions.

●His cancer treatment included radiation and chemotherapy, with unexpected results. ●He experienced no adverse reactions to chemo or radiation in the second week of treatment, despite steroid issues. ●By the end of two weeks, there were no palpable signs of a tumor left in his neck, per exam by his surgeon. Cancer treatment using natural remedies and research.

●Robb Owen discovered he had fast wound healing. ●He found correlations between dietary supplements and his cancer treatment. ●He discussed his cancer treatment with his oncologist, but the oncologist was resistant to his suggestions and concerns. ●He experienced severe dehydration during radiation treatment and found that drinking water helped alleviate symptoms.

●He decided to stop chemotherapy after researching his own case. ●His primary care physician told him he wouldn't be treated as a cancer patient if he walked in looking the way he did with improved blood work. ●He had doubts about his treatment decisions.

“Blueprint to Beat Cancer” (Robb Owen) [#103] ●Mayo Clinic reviewed his medical history and diagnostics, but couldn't take him as a patient. Alternative cancer treatment strategies and personal experiences. ●Robb Owen beat his cancer through a unique integrative approach to treating squamous cell carcinoma using natural and conventional methods.

●His theory: some people may have a more robust fibroblast system aiding cancer recovery. ●He believes his immune system is stronger due to lifestyle and supplements, which may have helped boost his cancer treatment. ●He discusses potential treatments for cancer, including the role of fibroblasts.

●He wonders whether the standard of care should change to respond to data points that deviate from traditional treatment methods. Medical system pushback. ●Robb Owen faced pushback from the medical system in trying to incorporate dietary interventions into his treatment plan. ●He sought permission to share his research findings with doctors, who expressed liability concerns.

●Doctors may be more open-minded to alternative treatments in clinical trials or research settings. ●He handled his anxiety and uncertainty in his path because of his experience pushing back against standard approaches. ●He joined and created a support group for patients. Modeling the pathways of his cancer treatment, for example, nicotine and dopamine effects.

●Rob Owen discussed the effects of nicotine on dopamine and other health outcomes.

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