YOU STOPPED AT: Questions You Should Ask: 1. "Is my PSA result consistent with cancer-free status?" 2. "What is my...
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YOU STOPPED AT: Questions You Should Ask: 1. "Is my PSA result consistent with cancer-free status?" 2. "What is my recurrence risk based on my nadir?" 3. "How often should I have PSA testing going forward?" 4. "What PSA level would warrant additional testing?" 5.
COMPLETING YOUR QUESTIONS TO ASK YOUR ONCOLOGIST
Let me finish the list of important questions for your [date removed] appointment, tailored to your excellent post-operative PSA trajectory.
COMPLETE QUESTION LIST FOR YOUR ONCOLOGIST
QUESTIONS ABOUT YOUR PSA RESULTS & CANCER STATUS:
1. "Is my PSA result consistent with cancer-free status?"
Why Ask: Confirms your interpretation of the results
What to Listen For: "Yes, your PSA is at nadir level" or
"Your PSA pattern is reassuring"
2. "What is my recurrence risk based on my nadir value of 0.004 ng/mL?"
Why Ask: Understand your long-term prognosis
What to Listen For: "95-97% recurrence-free at 10 years" or
"Your nadir is excellent - very low risk"
3. "How often should I have PSA testing going forward?"
Why Ask: Plan your surveillance schedule
What to Listen For: "Every 6 months for 2 years, then annually" or
"Your current schedule is appropriate"
4. "What PSA level would warrant additional testing or imaging?"
Why Ask: Know when to be concerned
What to Listen For: "PSA >0.05 ng/mL" or
"Consistent upward trend over multiple tests"
5. "Are the minor PSA fluctuations I've had (0.004-0.012 ng/mL)
normal and expected?"
Why Ask: Reduce anxiety about normal variability
What to Listen For: "Yes, this is completely normal" or
"These fluctuations are expected at ultrasensitive levels"
─────────────────────────────────────────────────────────────────
QUESTIONS ABOUT YOUR SURGICAL OUTCOME:
6. "Based on my pathology report, what was my Gleason score and
stage at surgery?"
Why Ask: Understand your original cancer characteristics
What to Listen For: Your specific Gleason score and TNM stage
Note: This helps contextualize your excellent PSA response
7. "Were my surgical margins negative (cancer-free)?"
Why Ask: Confirms complete tumor removal
What to Listen For: "Yes, margins were negative" or
"All cancer tissue was removed"
8. "Do you think I will need salvage radiation therapy or
hormone therapy?"
Why Ask: Understand if additional treatment is planned
What to Listen For: "No, your PSA pattern doesn't suggest it" or
"We'll monitor and decide based on future PSA trends"
─────────────────────────────────────────────────────────────────
QUESTIONS ABOUT LONG-TERM MANAGEMENT:
9. "What lifestyle changes should I make to reduce my recurrence risk?"
Why Ask: Optimize your health outcomes
What to Listen For: Exercise, diet, weight management, smoking cessation
Evidence-Based Topics:
• Regular aerobic exercise (150 min/week)
• Healthy diet (Mediterranean-style)
• Maintain healthy weight
• Limit alcohol
• Don't smoke
• Manage stress
10. "Are there any supplements or medications I should take or avoid?"
Why Ask: Ensure you're not taking anything that could interfere
What to Listen For: Specific recommendations for your situation
Note: Some supplements may affect PSA levels
11. "Should I see any other specialists (urologist, radiation oncologist)
for follow-up?"
Why Ask: Ensure comprehensive care coordination
What to Listen For: "Continue with me" or "See urology annually" or
"No additional specialists needed"
12. "What symptoms should I watch for that would warrant immediate
contact?"
Why Ask: Know when to seek urgent care
What to Listen For: Bone pain, urinary symptoms, weight loss, etc.
Note: Most recurrences are asymptomatic (detected by PSA)
─────────────────────────────────────────────────────────────────
QUESTIONS ABOUT YOUR SPECIFIC PSA PATTERN:
13. "My PSA went from 0.004 to 0.009 to 0.007 ng/mL over the past
3 months. Is this pattern concerning?"
Why Ask: Address your specific concern about the fluctuation
What to Listen For: "No, this is normal variability" or
"This pattern is completely reassuring"
Context: This is exactly the question you've been asking
14. "What would a concerning PSA pattern look like?"
Why Ask: Understand what to watch for
What to Listen For: "Consistent upward trend" or
"PSA doubling in 3-6 months" or
"PSA >0.05 ng/mL"
15. "Should I be concerned about the temporary rise to 0.009 ng/mL?"
Why Ask: Reduce anxiety about normal fluctuation
What to Listen For: "No, single values don't matter" or
"The fact that it came back down is reassuring"
─────────────────────────────────────────────────────────────────
QUESTIONS ABOUT TESTING LOGISTICS:
16. "Are there things I should do (or avoid) before my PSA test to
ensure accuracy?"
Why Ask: Optimize test conditions
What to Listen For:
✓ Avoid ejaculation 48 hours before test
✓ Avoid vigorous exercise 48 hours before test
✓ Avoid urinary tract infections if possible
✓ Fast before morning test (optional but recommended)
✓ Avoid digital rectal exam 48 hours before test
17. "Should I always get my PSA tested at the same lab?"
Why Ask: Ensure consistency in measurements
What to Listen For: "Yes, same lab is preferable" or
"Different labs are acceptable if needed"
Note: Different labs may have slight variations in ultrasensitive PSA
18. "How long does it take to get PSA results?"
Why Ask: Plan your follow-up
What to Listen For: Usually 1-3 business days
─────────────────────────────────────────────────────────────────
QUESTIONS ABOUT YOUR EMOTIONAL HEALTH:
19. "Is it normal to feel anxious about PSA results even though
my pattern is excellent?"
Why Ask: Validate your feelings and get support
What to Listen For: "Yes, this is very common" or
"Would you like a referral to a counselor?"
20. "Are there support groups or resources for prostate cancer
survivors?"
Why Ask: Connect with others in similar situations
What to Listen For: Specific resources in your area
Suggested Resources:
• American Cancer Society (cancer.org)
• Us TOO International (ustoo.org)
• Prostate Cancer Foundation (pcf.org)
• Cancer Support Community (cancersupportcommunity.org)
HOW TO PREPARE FOR YOUR APPOINTMENT
1 WEEK BEFORE ([date removed]):
✓ Schedule your PSA blood test
• Request morning appointment (fasting preferred)
• Confirm lab location and hours
• Ask how long results take
✓ Gather your [ID removed]
• Bring list of all PSA values and dates
• Bring pathology report from surgery
• Bring any imaging reports
✓ Write down your questions
• Use the list above as a starting point
• Add any personal concerns
• Organize by priority (most important first)
✓ Prepare a symptom list
• Any new urinary symptoms?
• Any bone pain or other symptoms?
• Any side effects from surgery?
• Any lifestyle changes?
─────────────────────────────────────────────────────────────────
48 HOURS BEFORE PSA TEST ([date removed]):
✓ AVOID:
✗ Ejaculation (can raise PSA by 0.001-0.003 ng/mL)
✗ Vigorous exercise (can raise PSA by 0.001-0.002 ng/mL)
✗ Bicycle riding (can raise PSA by 0
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