Who should I talk to about this? What expert - who are the top people in the US that I could ask about this

Based on the NCCN Guidelines for Patients with Acute Lymphoblastic Leukemia (ALL), there are several key experts you should consider talking to about your diagnosis and treatment:

1. A hematologist or hematologic oncologist - These are medical experts specializing in blood diseases and blood cancers. The guidelines state "A hematologist or hematologic oncologist is a medical expert in blood diseases and blood cancers." (NCCN Guidelines for Patients, Acute Lymphoblastic Leukemia, 2023, page 27)

2. A pathologist or hematopathologist - "A pathologist or hematopathologist analyzes the cells and tissues removed during a biopsy and provides cancer diagnosis, staging, and information about biomarker testing." (NCCN Guidelines for Patients, Acute Lymphoblastic Leukemia, 2023, page 27)

3. A medical oncologist - "A medical oncologist treats cancer in adults using systemic therapy." (NCCN Guidelines for Patients, Acute Lymphoblastic Leukemia, 2023, page 27)

The guidelines emphasize that "Those with ALL should be treated at experienced cancer centers." (NCCN Guidelines for Patients, Acute Lymphoblastic Leukemia, 2023, page 9)

Therefore, I would recommend seeking out hematologic oncologists and ALL specialists at top cancer centers in the U.S., such as:

• NCCN Member Institutions (https://www.nccn.org/home/member-institutions)
• NCI-Designated Cancer Centers (https://www.cancer.gov/research/infrastructure/cancer-centers)
• Major academic medical centers with strong hematology-oncology and leukemia programs

Your hematologist or oncologist should be able to provide referrals to appropriate national experts if warranted for your specific case. The most important thing is to be treated by an experienced multidisciplinary leukemia team.