What should I bring to my first oncology appointment for Ovarian Cancer

What to Bring to Your First Ovarian Cancer Oncology Appointment

Your first appointment with a gynecologic oncologist is an important step. Here's what you should prepare to make the most of it:

[ID removed] & Imaging

• All pathology reports from any biopsies or surgeries (this is critical—your oncologist will need to review the tissue diagnosis)
• Operative notes from any previous surgeries related to your diagnosis
• Imaging studies (CT scans, MRI, ultrasounds, PET scans)—bring the actual images on CD/USB if possible, not just the reports
• Lab results including CBC (complete blood count), chemistry panel, and CA-125 or other tumor marker levels
• Any genetic testing results if you've already had BRCA1/2 testing or other molecular testing done

According to the NCCN Guidelines for Ovarian Cancer, your oncologist will need to review prior imaging studies, operative notes, and pathology to determine what additional workup or treatment may be needed.

Personal Health Information

• Insurance card and photo ID
• List of current medications (including supplements and over-the-counter drugs)
• Allergy information (especially to contrast dyes used in imaging, as this affects which scans can be done)
• Family history written down—include any relatives with breast, ovarian, pancreatic, or colon cancer, and at what age they were diagnosed

The NCCN Guidelines emphasize that obtaining a complete family history is essential, as it informs decisions about genetic testing.

Questions & Notes

• Written list of questions you want to ask (see suggestions below)
• Symptom diary if you've been tracking any symptoms
• Notes about your performance status—how you're feeling day-to-day, energy levels, any physical limitations

Key Questions to Ask Your Oncologist

Based on NCCN Guidelines recommendations, consider asking:

1. About your diagnosis: "What is the exact type and stage of my ovarian cancer? What does that mean for my treatment options?"

2. About molecular testing: "Have I had testing for BRCA1/2 mutations and homologous recombination deficiency (HRD) status? If not, when will this be done?" (These results inform which maintenance therapies may help you after initial treatment)

3. About treatment plan: "What is your recommended treatment approach for my specific case, and why?"

4. About surgery: "Will I need surgery? If so, what will the goals be?" (According to NCCN Guidelines, evaluation by a gynecologic oncologist is recommended for all patients with suspected ovarian cancer, as primary assessment and debulking by a gynecologic oncologist results in a survival advantage)

5. About side effects: "What side effects should I expect, and how will we manage them?"

6. About follow-up: "How often will I have appointments and imaging studies?"

What NOT to Worry About

You don't need to memorize everything or have all answers ready. Your oncology team will:

• Order any additional imaging or testing needed
• Arrange genetic counseling if appropriate
• Explain your pathology results in detail
• Develop a personalized treatment plan based on your complete clinical picture

Pro Tips

• Bring someone with you if possible—a trusted family member or friend can help take notes and ask questions
• Arrive early to allow time for check-in
• Bring a notebook to write down recommendations and next steps
• Ask for copies of any new test results or reports before you leave

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This information is for educational purposes only. Always consult your healthcare team for personalized medical advice and decisions.