What should I bring to my first HER2-Positive Breast Cancer appointment

What to Bring to Your First HER2-Positive Breast Cancer Appointment

Great question—being prepared helps you get the most out of your appointment and ensures your care team has all the information they need. Here's what to bring:

Essential Medical Documents

Your Pathology Report & Test Results

• Your biopsy results showing HER2-positive status
• Any imaging reports (mammogram, ultrasound, MRI results)
• Lab work from your diagnostic workup
• Copies of any previous breast imaging for comparison

According to NCCN Guidelines for Invasive Breast Cancer, your HER2 testing should have been done using validated methods (either immunohistochemistry/IHC or in situ hybridization/ISH testing). Bring these results so your oncologist can review the specific testing methodology and results.

**Previous [ID removed]

• Records from any biopsies or surgeries
• Reports from other doctors who've evaluated you
• Genetic testing results (if you've had BRCA or other hereditary cancer testing)

Personal Health Information

Medical History Documentation

• A list of all current medications (prescription, over-the-counter, supplements, and herbals)
• Your complete medical history
• Family history of cancer or other serious illnesses
• Any allergies to medications

According to NCCN Guidelines, your care team will ask detailed questions about your medical history and family history, as this information helps determine which treatment approach is best for you.

Insurance & Administrative Items

• Insurance card(s)
• Photo ID
• List of any prior authorizations needed
• Contact information for your primary care doctor

Practical Items for the Appointment

• A notebook or device to take notes during the appointment
• A list of questions you want to ask (see below)
• A trusted support person (friend, family member, or partner) if possible—they can help you listen, take notes, and provide emotional support

Questions to Ask Your Oncologist

Since you have HER2-positive breast cancer, here are specific questions to prepare:

1. "Can you explain my HER2 test results and what HER2-positive means for my treatment options?"

2. "What is my hormone receptor status (ER/PR)?" This matters because HER2-positive cancers can be hormone receptor-positive or negative, which affects treatment planning.

3. "What HER2-targeted therapies do you recommend for me, and why?" (Common options include trastuzumab and pertuzumab, which are FDA-approved HER2-targeted therapies)

4. "Will I need chemotherapy along with HER2-targeted therapy?"

5. "What are the potential side effects of the treatments you're recommending, and how will we manage them?"

6. "Do you recommend any genetic testing (like BRCA testing)?" According to NCCN Guidelines, genetic counseling may be recommended depending on your age and family history.

Why This Matters

According to NCCN Guidelines for Patients with Invasive Breast Cancer, having complete information helps your care team:

• Understand your complete medical picture
• Make personalized treatment recommendations
• Identify any potential drug interactions
• Discuss fertility concerns if relevant to you
• Plan your overall care strategy

Pro Tips

• Get copies of everything: Request copies of all test results and reports for your own records. You can organize these in a folder or digital file.
• Set up a patient portal: Ask if your healthcare system has a patient portal (like MyChart) where you can access results and communicate with your care team.
• Bring contact information: Have a list of all your doctors' phone numbers and addresses ready.

The NCCN Guidelines emphasize patient engagement—your care team wants you to understand your diagnosis and participate in treatment decisions. Coming prepared shows you're ready to be an active partner in your care.

---

This information is for educational purposes only. Always consult your healthcare team for personalized medical advice and decisions.