What questions should I ask my oncologist about Ovarian Cancer

Key Questions to Ask Your Ovarian Cancer Oncologist

Based on current cancer care best practices, here are the most important questions to help you understand your diagnosis and treatment options:

ABOUT YOUR DIAGNOSIS & WHAT'S DRIVING YOUR CANCER

Start with these foundational questions:

• "What is driving my tumor growth?" This helps your doctor explain the specific characteristics of YOUR cancer, not just the general diagnosis.
• "Can you explain my cancer stage and what that means for my treatment?"
• "What are the specific characteristics of my tumor that will guide treatment decisions?"

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ABOUT GENETIC & MOLECULAR TESTING

This is critical for ovarian cancer because certain genetic mutations significantly change treatment options:

• "What genetic testing should I get?" According to current cancer care guidelines, you should ask about:

  • BRCA1/BRCA2 testing (germline - testing your normal cells for inherited mutations)
  • Tumor genetic profiling (somatic - testing the cancer cells themselves)
  • Comprehensive genomic profiling - a broader test that looks at multiple genes in your tumor

• "Should I get a comprehensive genomic profile of my tumor?" This can uncover actionable mutations that might open up targeted therapy options beyond standard chemotherapy.

• "Why is biomarker testing needed for my specific case?"

• "How will these tests be done, and when will I get results?" Ask about "point-of-care" testing, which provides faster results when you need them most.

• "Can I get a copy of my complete test report?" You have the right to your own medical data.

• "What are the costs, and will my insurance cover these tests?" Don't let cost barriers prevent you from getting important testing.

• "What are the consequences of my diagnosis for my family members?" If you have genetic mutations, your relatives may need testing too.

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ABOUT TREATMENT OPTIONS

• "What are ALL the treatment options available for my specific cancer profile?" Don't settle for just the standard approach - ask what alternatives exist.

• "Are there targeted therapies available based on my tumor's genetic profile?" For example, if you have BRCA mutations or other specific mutations, targeted drugs may be an option.

• "Should I consider immunotherapy, and if so, under what circumstances?"

• "Are there clinical trials available for me?" Ask specifically:

  • What trials match my cancer type and stage?
  • How will you help me find them?
  • Are there trials at other institutions I should know about?

• "Under what circumstances will you change my treatment if the current approach isn't working?" This helps you understand the plan if your cancer doesn't respond as expected.

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ABOUT YOUR CARE TEAM & EXPERTISE

• "Do you have specific expertise in ovarian cancer?" Consider seeking a second opinion from an ovarian cancer specialist, especially at a comprehensive cancer center.

• "If you can't help me, will you recommend other places with more advanced capabilities?" This ensures you get access to the best possible care.

• "Can I get a second opinion on my diagnosis and treatment plan?" This is always appropriate and encouraged.

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ABOUT MONITORING & FOLLOW-UP

• "How frequently should I get tests to monitor my cancer?" This might include imaging, blood work, or other monitoring.

• "What symptoms or changes should I report immediately?"

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ABOUT PRECISION MEDICINE & YOUR UNIQUE SITUATION

According to cancer care experts, your cancer journey is unique:

• "How will you personalize my treatment based on my specific tumor's characteristics?"

• "Are there any emerging tests or treatments I should know about?" The field is advancing rapidly, and new options may become available.

• "Can you provide me with educational resources about genetic and genomic tests relevant to my case?"

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PRACTICAL QUESTIONS ABOUT YOUR CARE

• "Can you explain these complex terms in simpler language?" Don't hesitate to ask for clarification.

• "My understanding is [X], is that correct?" Confirm you understand what you've been told.

• "Can we schedule time to thoroughly discuss my test results?" You deserve time to understand what your results mean.

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ADVOCATING FOR COMPREHENSIVE TESTING

According to cancer care guidelines from the American Society of Clinical Oncology (ASCO) and the National Comprehensive Cancer Network (NCCN), you should advocate for comprehensive testing early in your cancer journey. As one expert notes: "Without this knowledge, you may not realize there are additional testing or treatment options beyond the standard of care that your doctor initially recommends."

Key advocacy points:

• Push for comprehensive genomic profiling if it hasn't been done
• Ask about liquid biopsies (blood tests) that can detect circulating tumor DNA
• Request detailed explanations of how specific tests might inform YOUR treatment decisions
• Don't be afraid to challenge your healthcare provider if you feel important testing is being skipped

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BUILDING YOUR CARE PARTNERSHIP

The goal is to work WITH your oncologist as a partner:

• Come prepared with written questions
• Take notes or bring someone to help you remember information
• Ask for clarification until you truly understand
• Share your preferences about treatment and quality of life
• Stay informed about the latest research and treatment advances

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WHERE TO FIND MORE INFORMATION

For ovarian cancer-specific information, consult:

• NCCN Guidelines for ovarian cancer (available at nccn.org)
• American Cancer Society ovarian cancer resources
• National Cancer Institute (NCI) patient information
• ASCO (American Society of Clinical Oncology) patient education materials

This information is for educational purposes only. Always consult your healthcare team for personalized medical advice and decisions.